A brave 18-year-old who suffers from a rare condition that took experts years to identify is planning to start a YouTube channel to raise awareness and encourage others.

Jordon Jones, of Bulkeley Avenue, Windsor, was diagnosed with a rare form of dwarfism a year ago.

Doctors had spent years treating her, at the Great Ormond Street children's hospital and Nuffield Orthopaedic Hospital in Oxford - as she passed through Windsor's education system, attending Oakfield First and St Edward's Middle Schools and Windsor Girls School.

Miss Jones said: "It could be difficult. When I was younger I did feel like the odd one out. But later on I came to understand things better and realised that nothing was going to change and that you have to get on with it."

She is proud of the fact she got five GCSEs, despite her education being frequently interrupted by the many hospital appointments she had to keep.

But she found a new purpose when her condition was finally identified as Acrodysotosis. It is an extremely rare condition that causes pain and fatigue. No-one knows how many people may have the condition because it is so difficult to diagnose - after years of tests, one solitary gene finally revealed to doctors that Miss Jones had it.

She said: "Raising awareness is extremely important as without awareness there is no funding and without funding there is no research. If there was no research there would be no cure.

"Awareness is vital to come up with a treatment to make peoples' lives easier."

Now Miss Jones - who lives with her grandparents Bill and Gwendoline - hopes her planned YouTube channel might help.

She said: "I like helping people and I hope I can encourage people to feel they are not alone even if things get hard - that they can still overcome."

She is brimming over with ideas to keep the channel fresh and interesting - including involving other people talking about the different jobs they do.

But raising health issues and raising awareness is her main objective.